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Additional Patient Support2019-10-24T13:21:10+00:00

Additional Patient Support

Carers UK
Carers UK is the voice of carers and the leading campaigning, policy and information organisation for carers.
www.carersuk.org

SNAP Childcare
Recruitment agency that provides nannies, carers and child workers for all children, including those with special needs.
www.snapchildcare.co.uk

ChildLine
The UK’s free, 24-hour helpline for children and young people.
www.childline.org.uk

YoungMinds
The national charity committed to improving the mental health of all children.
www.youngminds.org.uk

MENCAP
A free and confidential helpline providing information and advice about learning disability issues.
www.mencap.org.uk

MIND
MIND is a leading mental health charity in England and Wales and works for a better life for everyone with experience of mental distress.
www.mind.org.uk

Change
Change is national organisation for people with learning disabilities, especially those who are deaf or blind.
www.widerworld.co.uk/charge

National Association for Deafened People
Promotes the development of children and young people with special educational needs and supports those who work with them.
www.nadp.org.uk

Royal National Institute for Deaf People
Aims to achieve better quality of life for deaf and hard of hearing people.
www.rnid.org.uk

UK Council on Deafness
Aims to improve and extend cooperation between member organisations in promoting and representing the interests of deaf, deafened, deafblind and hard of hearing people.
www.deafcouncil.org.uk

Hearing Concern
A volunteer led organisation that provides advice, information and support through national helpdesk to hard of hearing people throughout the UK.
www.hearingconcern.org.uk

Forest bookshop
Specialists in books, CD-ROMS and videos on deafness and deaf issues.
www.forestbooks.com

Change
Change is national organisation for people with learning disabilities, especially those who are deaf or blind.
www.widerworld.co.uk/charge

Deafax Trust
Deafax assists deaf adults and children to communicate effectively with hearing people on an equal basis. Education and training programs available.
www.deafax.org

MRC Institute of Hearing Research
Conducts research into hearing and hearing impairment.
www.ihr.mrc.ac.uk/

National Association for Deafened People
Promotes the development of children and young people with special educational needs and supports those who work with them.
www.nadp.org.uk

Royal National Institute for Deaf People
Aims to achieve better quality of life for deaf and hard of hearing people.
www.rnid.org.uk

UK Council on Deafness
Aims to improve and extend cooperation between member organisations in promoting and representing the interests of deaf, deafened, deafblind and hard of hearing people.
www.deafcouncil.org.uk

Deaf UK Jobs
A free emailing list that advertises job vacancies that are deaf related.
Email: deaf-uk-jobs-subscribe@yahoogroups.com

Hearing Concern
A volunteer led organisation that provides advice, information and support through national helpdesk to hard of hearing people throughout the UK.
www.hearingconcern.org.uk

Hearing Dogs for Deaf People
A registered charity that trains dogs to alert severely and profoundly deaf people to sounds they cannot hear.
www.hearingdogs.org.uk

Typetalk
This is the national telephone relay service that enables deaf, deafblind, deafened, hard of hearing and speech impaired people to communicate with hearing people anywhere in the world.
www.typetalk.org.uk

Connexions
Support for deaf teenagers.
www.connexions-northlondon.co.uk

Ear Foundation
Supports children and young people with cochlear implants, their families and supporting professionals.
www.earfoundation.org.uk

Snorer
A resource site for people with affected by sleep apnoea and snoring
https://www.snorer.com/information-guides/

Health
British Tinnitus Association
Provides help and support for people with tinnitus.
www.tinnitus.org.uk

Meniere’s Society
The UK’s leading charity for people with vestibular (inner ear) disorders causing dizziness and imbalance
www.menieres.org.uk

Fifth Sense
A UK based charity which supports people affected by smell and taste disorders across the world, and are the first charity providing direct support, advice, and a signpost to potential diagnosis and treatment to people affected by such conditions.
http://www.fifthsense.org.uk/

ENT UK
Provide useful information and self management techniques for patients.
https://www.entuk.org/ent-conditions-and-procedures

The American Academy of Otolarynology
Provides health information, created by our member physicians, provides a basic overview of diagnoses and treatment for many diseases and disorders of the ears, nose, throat, head and neck.
https://www.entnet.org/content/patient-health

Skin Support
A website developed by the British Association of Dermatologists. It has a wealth of information on various skin conditions, self-help materials and information on support services.
http://skinsupport.org.uk/

Changing Faces
This is the leading charity for people in the UK with a visible difference: a mark, scar or condition that makes them look different. They provide advice, support and psychosocial services to children, young people and adults. They offer face-to-face and telephone counselling sessions, email advice and self-help guides. They also run small group workshops and advise on skin camouflage.
https://www.changingfaces.org.uk/adviceandsupport

American Acne Foundation (AAF)
Provides information on acne and its treatments as well as support to people, including teenagers, with acne. The AAF updates its information frequently from respected sources, including the National Institutes of Health (NIH). Information from clinical trials and research is included.
https://acnefoundation.org/

Talk Acne (from Talk Health Partnership)
A community sharing experiences and knowledge to make life with acne easier. Includes blogs, forums, the latest news and research. People can ask experts for guidance and register their interest for an online patient support programme. http://www.talkhealthpartnership.com/talkacne/

Acne Support
A British Association of Dermatologists (BAD) site on acne, including information on emotional support.
https://www.acnesupport.org.uk/

Alopecia UK
Information and tips about living with the condition, support groups, family support, online discussion forums and peer support, sharing stories, awareness and fundraising events.
https://www.alopecia.org.uk/

Chronic spontaneous urticaria
SymTrac Hives app Supports people to track symptoms (using the urticaria activity score (UAS) and its weekly sum (UAS7 score), uploaded photos, and notes) and their impact on quality of life (using the DLQI). It encourages communication of this information to healthcare professionals. https://www.novartis.co.uk/symtractm-hives

National Eczema Society
Includes a free helpline providing information, support and reassurance to people struggling to cope with eczema. They also run support groups in various locations, including London.
https://www.eczema.org/

Atopic Skin Disease
An online community that promotes use of the ‘combined approach’ – topical treatments and use of habit reversal to reduce scratching. Randomised controlled trials suggest that habit reversal plus topical treatments are superior to topicals alone in atopic eczema.
https://www.atopicskindisease.com

Hyperhidrosis UK
Information and support to help you live with hyperhidrosis.
https://www.hyperhidrosisuk.org

The Psoriasis Association
Online information about the condition and treatments, helpline for further advice, e-newsletter and patient-focused journal. They hold online discussion forums, raise awareness, fundraise, promote research, and represent members at local and national levels.
https://www.psoriasis-association.org.uk/

The Vitiligo Society
Regular updates and newsletter, open days to meet others with the condition, social media contact (Facebook and Twitter), campaigning and raising awareness.
https://www.vitiligosociety.org.uk/